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Dinner and Dance by the Bay for CASK 2023

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Dinner & Dance Page Update

Thank you to each of our attendees and Sponsors.

$46,100.00 total funds raised!

Words are not enough to describe how grateful we are.

On behalf of ACNRF and our CASK Community we thank each of our Sponsors and every person who contributed by attending, by purchasing raffle tickets, by purchasing auction items, by donating – YOU each are an inspiration and you have given us HOPE for a CURE now more than ever.

 

Date: Friday 30 June 2023

Time: 6pm to 11pm

Join us for a fantastic night by the Bay at the Grand Roxy Brighton Le Sands raising funds for research into a CURE that could change Angelina’s life and other girls like Angelina.

All proceeds will go directly to CASK Research. Last day for “tax deductions”!

What will the evening consist of?

4 Course Meal and drinks
Music
Raffle Prizes
Auction

Dress Code

This event is fancy formal get out your sparkling dresses and bow ties!

Or if you would like to wear smart casual instead, that is absolutely fine as well!

Price

$140 per person

Location:

The Grand Roxy, 128 The Grand Parade Brighton Le Sands NSW.

Closest Parking: Novotel Brighton Car Park and side streets around venue

Please email admin@curecask.com for any specific dietary requirements (with the individuals name) once you have purchased tickets or if you wish to be placed on a specific table with other guests.

Tables are of 10.

Payment Options

Direct Transfer/Deposit

If you wish to purchase your tickets or donate by way of Transfer/Direct Deposit please see below account details.

Please ensure you note your name in the reference details and email us at admin@curecask.com with details of your purchase so we can provide you with a receipt.

ANGELINA CASK NEUROLOGICAL RESEARCH FOUNDATION LTD.

BSB: 082-001

Account Number: 56-374-9648

Credit Card or PayPal


Should you not see an email from us confirming your purchase please check your JUNK EMAIL!

Event Sponsors

DONATE AUSTRALIA
DONATE USA
SHOP AUSTRALIA
SHOP USA

Lavvina Thiyagarajan

MBBS

Lavvina is a clinical genetics fellow from NSW, Australia with a background in general paediatrics. She has practiced in multiple tertiary paediatric hospitals in Australia, both in general paediatrics and clinical genetics. She currently provides specialist advice for the NGO, Taking Paediatrics Abroad and is a member of GeneEQUAL, an inclusive research group aiming to improve accessibility of genetic testing and care for people with intellectual disability by co-design.

Lavvina’s clinical interests are in the genetics of autism, intellectual disability and immunogenomics. She is particularly passionate about including the patient groups she works with in research and healthcare decisions.

Lavvina is affiliated with The Children’s Hospital Westmead and the University of New South Wales where she is undertaking a Masters by Research, co-producing a model of genetic healthcare that aligns with the preferences of Autistic people.

Permission to Use Photos and Media

I, the undersigned, give my consent to the Angelina CASK Neurological Research Foundation Ltd and Angelina CASK Neurological Research Foundation Inc (ACNRF) to use photographs, videos, or other media featuring me, my child, or an individual under my legal guardianship (“Media Materials”).

This consent permits ACNRF to use these Media Materials for purposes such as:

  • Raising awareness of CASK-related disorders
  • Promoting ACNRF’s initiatives, campaigns, and programs
  • Sharing on ACNRF’s website, social media, newsletters, and other communication channels
  • Use in advertising, educational resources, and fundraising efforts.

I understand that these materials may be distributed publicly and may appear in print, digital, and other media formats worldwide and in perpetuity.

Terms and Conditions:

1. Usage Rights: I grant ACNRF the right to edit, adapt, or modify the Media Materials as needed for the purposes outlined above.

2. No Compensation: I acknowledge that no monetary or other compensation will be provided for the use of the Media Materials.

3. Release of Claims: I waive any rights to inspect or approve the final product and release ACNRF from any claims, liabilities, or damages related to the use of the Media Materials, including but not limited to claims of defamation, privacy, or copyright infringement.

4. Ownership Confirmation: I confirm that I have the authority to grant these rights for the provided Media Materials and that they do not infringe on the rights of any third party.

This authorisation is voluntary and may be revoked by written notice to ACNRF at any time, though I understand that materials already published may not be withdrawn.

“In some ways, that CASK-linked pathology is degenerative in nature provides a positive outlook. Because microcephaly in CASK-linked pathology progresses postnatally, there may be a temporal window when therapeutic intervention might prevent or slow further brain cell loss. Regression, even in adolescence, has also been observed in some cases of MICPCH [119], again offering the tantalizing possibility that a therapeutic approach might prevent such decline under conditions when degeneration is known to progress. The potential benefits of intervention might extend even further given that non-cell-autonomous toxicity could also affect functioning of the remaining neurons; reduction of such toxicity, especially when coupled with high-intensity rehabilitative measures [120], might offer real hope for a positive impact on functional outcomes.”   

https://www.mdpi.com/2073-4409/11/7/1131/htm