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Fundraise USA

There are many ways you can help us fundraise!!! 

Below are just some simple suggestions:

PayPal Giving Fund

If you have a PayPal account you can make a donation through the PayPal Giving Fund. 

All you need to do is click on our PayPal Giving Fund link, select your donation amount and log into your PayPal account.

You will also have the opportunity to select us as your favourite charity, which will allow you to easily support us when checking out with PayPal at other online stores such as Ebay. 

100% of proceeds will go directly to our charity!

Facebook

If you are on Facebook, creating a fundraiser event for Cure Cask USA is very easy.

    1. Tap in the top right of Facebook.
    2. Tap Fundraisers.
    3. Tap Raise Money.
    4. Tap Nonprofit.
    5. Select our charity “CURE CASK- Angelina Cask Neurological Research Foundation Inc  United States”
    6. Enter: The goal amount you want to raise and you are all set to start fundraising!

Host your own fundraiser!

Hosting your own fundraiser can be a rewarding and impactful way to make a difference. You don’t need to plan an extravagant event; even simple fundraisers can have a big impact.

Consider organising a bake sale in your community, where you can sell homemade treats. Another idea is to host a garage sale and donate a portion of the earnings to Cure Cask or a BINGO night. You could get your local school involved and they could hold a Mufti Day for a dollar coin per child.

The possibilities are endless, and the key is to tap into your creativity and passion for a meaningful cause. Remember, every little bit helps, and your efforts can make a positive change in the lives of those with CASK.

So, go ahead and take the initiative to host your own simple fundraiser and make a difference in our CASK Community and beyond. Please contact us so we can assist you and also arrange the secure transfer of any donated funds.

fundraise usa

Just Giving

A great way to fundraise is on Just Giving where you can create your own Fundraising Page! 

Its easy to set up and if you need inspiration have a look https://www.justgiving.com/for-fundraising/fundraise

Giving Fund

Is your Workplace part of a giving Fund?

ACNRF USA are already linked to the following Workplace Giving Funds:

DONATE AUSTRALIA
DONATE USA
SHOP AUSTRALIA
SHOP USA

Lavvina Thiyagarajan

MBBS

Lavvina is a clinical genetics fellow from NSW, Australia with a background in general paediatrics. She has practiced in multiple tertiary paediatric hospitals in Australia, both in general paediatrics and clinical genetics. She currently provides specialist advice for the NGO, Taking Paediatrics Abroad and is a member of GeneEQUAL, an inclusive research group aiming to improve accessibility of genetic testing and care for people with intellectual disability by co-design.

Lavvina’s clinical interests are in the genetics of autism, intellectual disability and immunogenomics. She is particularly passionate about including the patient groups she works with in research and healthcare decisions.

Lavvina is affiliated with The Children’s Hospital Westmead and the University of New South Wales where she is undertaking a Masters by Research, co-producing a model of genetic healthcare that aligns with the preferences of Autistic people.

Permission to Use Photos and Media

I, the undersigned, give my consent to the Angelina CASK Neurological Research Foundation Ltd and Angelina CASK Neurological Research Foundation Inc (ACNRF) to use photographs, videos, or other media featuring me, my child, or an individual under my legal guardianship (“Media Materials”).

This consent permits ACNRF to use these Media Materials for purposes such as:

  • Raising awareness of CASK-related disorders
  • Promoting ACNRF’s initiatives, campaigns, and programs
  • Sharing on ACNRF’s website, social media, newsletters, and other communication channels
  • Use in advertising, educational resources, and fundraising efforts.

I understand that these materials may be distributed publicly and may appear in print, digital, and other media formats worldwide and in perpetuity.

Terms and Conditions:

1. Usage Rights: I grant ACNRF the right to edit, adapt, or modify the Media Materials as needed for the purposes outlined above.

2. No Compensation: I acknowledge that no monetary or other compensation will be provided for the use of the Media Materials.

3. Release of Claims: I waive any rights to inspect or approve the final product and release ACNRF from any claims, liabilities, or damages related to the use of the Media Materials, including but not limited to claims of defamation, privacy, or copyright infringement.

4. Ownership Confirmation: I confirm that I have the authority to grant these rights for the provided Media Materials and that they do not infringe on the rights of any third party.

This authorisation is voluntary and may be revoked by written notice to ACNRF at any time, though I understand that materials already published may not be withdrawn.

“In some ways, that CASK-linked pathology is degenerative in nature provides a positive outlook. Because microcephaly in CASK-linked pathology progresses postnatally, there may be a temporal window when therapeutic intervention might prevent or slow further brain cell loss. Regression, even in adolescence, has also been observed in some cases of MICPCH [119], again offering the tantalizing possibility that a therapeutic approach might prevent such decline under conditions when degeneration is known to progress. The potential benefits of intervention might extend even further given that non-cell-autonomous toxicity could also affect functioning of the remaining neurons; reduction of such toxicity, especially when coupled with high-intensity rehabilitative measures [120], might offer real hope for a positive impact on functional outcomes.”   

https://www.mdpi.com/2073-4409/11/7/1131/htm